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Life with Lavendar in London town

Sunday, 9 December 2012

Introducing Charlotte....

In early October, I ran a half marathon to raise money towards a cure for Retts Syndrome.  I did it because Charlotte has been diagnosed with this condition.  Once I started reading up on Retts, it was evident that it was not a well - known condition with lots of celebrity backing and a public profile; unlike conditions such as Downs Syndrome or autism. Ninety percent of people who donated to my campaign had never heard of it before.

Why is Retts so hidden?

Her mum Caroline started to write a blog about Charlotte's journey.  Here you can find out more about the day-to-day life of Charlotte in her mother's words.

http://charlottetwenty09.wordpress.com/